Birthdays mark the end of a year of growth and development, a year of experiences, and a joyous start to the next year. Our family celebrated K's 3-year-old birthday yesterday, and this special day reminds us of the mercy and love our Heavenly Father has shown us since her birth, and especially for the past one year when she was hospitalised at the paediatric ICU twice. That was a total of 76 days being critically ill.
Our princess warrior survived Extracorporeal Membrane Oxygenation (ECMO), kidney dialysis, chest tube insertion, intubations and ventilated using the High Frequency Oscillatory Ventilation (HFOV), numerous X-rays, Cardiopulmonary Resuscitations (CPR) performed on her, countless pricks for various blood tests and multiple insertion of feeding tubes through her nose into her stomach/small intestines - all these just in the last one year. I did a count on the number of medical specialists who help us manage her physical health currently - she sees the cardiac specialist, the respiratory specialist, gastroenterology specialist, renal specialist, eye specialist, ENT specialist for her ear, neurology specialist and her paediatrician who oversees her development. Not forgetting her endearing team of dietician and therapists for physiotherapy and feeding. I still need to add on a speech therapist for her speech and language development and an occupational therapist (both roles assumed by me for now). That is a loooong list of medical staff she sees!
Despite all these, K has repeatedly reminded us of God's promise for us that we are able to bear all these challenges and overcome them. Yes, we cried and were saddened each time she was critically ill with pneumonia. We almost stopped breathing when her oxygen dropped so low that she had to be given CPR to be resuscitated. We pained each day when she was on ECMO as well as being ventilated by the breathing tube. But each time, we continued to hold on to God, and we know that God hears our prayers and knows our pain too, and His plans will always be the best for K.
Each time K was critically ill in the PICU, she emerged stronger - not in terms of physical strength, but by her fighting spirit. Each time, she fought on harder, and overcame those hurdles in her life. The first time she stayed at PICU last year, she started doing the four-point crawl, a movement she didn't display for many months despite many physiotherapy sessions. The second time she stayed at the PICU in Feb this year, she was able to vocalize more sounds after her discharge. This recent admission left her physically the weakest. She did not have the strength to lift her head and arms, roll over or even sit up for many weeks. But slowly, little by little, she cooperated with me to complete her exercises and regained much of her strength to prove that she can.
She is also a very observant child, and imitates us well. She "uses" the stethoscope in a rather professional way, "checks" her temperature with the ear thermometer, and even knows that the sensor of the pulse oximeter should be fixed onto her finger for it to work! To my horror, I even caught her turning the control knob of the oxygen concentrator (a machine that delivers a concentrated level of oxygen to her) just like how I do it.
She is also a very observant child, and imitates us well. She "uses" the stethoscope in a rather professional way, "checks" her temperature with the ear thermometer, and even knows that the sensor of the pulse oximeter should be fixed onto her finger for it to work! To my horror, I even caught her turning the control knob of the oxygen concentrator (a machine that delivers a concentrated level of oxygen to her) just like how I do it.
As we continue to walk this journey with K, to support her in whatever ways she needs, we pray that she will continue to shine her light for God to encourage the people around her, to continue her joyful outlook and not feel burdened by any factor that can weigh her spirits down, and to always look to God when she needs the strength to overcome any challenge. We are thankful to everyone who has played a part in her life to make it better, and happier for her.
Happy birthday, K!
PS. May I request for you to write a birthday wish or message to K? We will be reading all the birthday messages to her so that she knows she is so loved.
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